CHAPTER 4 92 Methods To answer the question which interview techniques and skills were used and helpful, two research designs were carried out on the videotapes of the semistructured interviews of nine cases included in the study of Lindenschot et al. (2020). First, we analysed the successfulness of the interviews in uncovering the child perspective on the level of content and enriched this with observing (in) adequate responses of the child to the interviewer’s questions. Next, the communicative ability of the children was observed with the communication classification of Oskam and Scheres (2016) and the type of questions the interviewer used were observed with the classification of Blank (2001). Lastly, a qualitative directed content analyses (Hsieh & Shannon, 2005) was performed. All procedures performed in this study were in accordance with the ethical standards of the institutional and/or national research committee, the 1964 Helsinki declaration and its later amendments or comparable ethical standards (General Assembly of the World Medical, 2014). The ethical board of the regional research committee provided their consent (number 2016-2968). All parents and professionals signed informed consent. Where indicated, the children also signed the informed consent to recognize their volition/agency (Stafford et al., 2003). Data collection Subject of the study were the 12 hours of video-recorded interviews of nine children with a genetically confirmed mitochondrial disorder aged 6 to 18 years with different functioning profiles varying in age and gender; these children were included in the study of Lindenschot et al. (2020). All interviews were performed by the same researcher (ML), who is a certified paediatric occupational therapist with experience in conducting interviews with children with different communication/cognitive levels. ML has a strong focus on occupation and due to her experience with children with various abilities, she was flexible to adapt to different levels of functioning. The interview was scheduled at a location chosen by the child and his/her parents: at home or at the hospital. More information on demographics can be found in Lindenschot et al. (2020). Data extraction and analysis The videos showed semi-structured interviews in which it was aimed to get insight in the perspective of children on their everyday activities. All interviews were conducted with the same topic list and interview guide and interview techniques were adapted to the child’s abilities and his/her communication preferences based on professional knowledge. The audio of the videotapes was transcribed. Non-verbal responses, based on the video footage, were added in the transcriptions. Three
RkJQdWJsaXNoZXIy MjY0ODMw