Thesis

Table of contents Chapter 1 General Introduction 13 Part I 33 Chapter 2 Everyday activities for children with mitochondrial disorder: a retrospective chart review Occupational Therapy International, 2018 35 Chapter 3 The perspectives and values of children with a mitochondrial disorder with regard to everyday activities Journal of Developmental and Physical Disabilities, 2020; 32(3), 509-534 53 Chapter 4 Tailored interviewing to uncover the perspective of children with multiple disabilities on daily activities: a qualitative analyses of interview methods and interviewer skills Australian Occupational Therapy Journal, 2022 87 Chapter 5 Insight into performance of daily activities in real life of a child with limited physical, cognitive and communication abilities: a case report Journal of Occupational Therapy, Schools & Early Intervention, 2022; 15(2), 205-217 111 Part II 129 Chapter 6 Perceive, Recall, Plan, and Perform (PRPP)-Assessment based on parent provided videos of children with mitochondrial disorder: action design research on implementation challenges Physical and Occupational Therapy in Pediatrics, 2022 131 Chapter 7 The Reliability and Validity of the Perceive, Recall, Plan, and Perform Assessment in children with mitochondrial disorder Disability and Rehabilitation, 2022 155 Chapter 8 Using PRPP-Assessment for measuring change in everyday activities by home-based videos: an exploratory case series study in children with multiple disabilities Revised version submitted to Journal of Occupational Therapy, Schools & Early Intervention 195 Chapter 9 General Discussion 223 Chapter 10 Summary Nederlandse samenvatting Extensive summary for educational purposes 249 251 253 Appendices Dankwoord Nawoord Portfolio Research Data Management Curriculum Vitae List of publications 269 277 279 281 283 285

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