Thesis

MEANINGFUL ACTIVITIES OF CHILDREN WITH MITOCHONDRIAL DISORDER 85 3 Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative health research, 15(9), 1277-1288, doi:10.1177/1049732305276687. Kisler, J. E., Whittaker, R. G., & McFarland, R. (2010). Mitochondrial diseases in childhood: a clinical approach to investigation and management. Developmental Medicine & Child Neurology, 52(5), 422-433, doi:10.1111/j.1469-8749.2009.03605.x. Kitto, S. C., Chesters, J., & Grbich, C. (2008). Quality in qualitative research. Medical journal of Australia, 188(4), 243-246. Koene, S., & Smeitink, J. (2009). Mitochondrial medicine: entering the era of treatment. Journal of internal medicine, 265(2), 193-209, doi:10.1111/j.1365-2796.2008.02058.x. Koene, S., Wortmann, S. B., de Vries, M. C., Jonckheere, A. I., Morava, E., de Groot, I. J., et al. (2013). Developing outcome measures for pediatric mitochondrial disorders: which complaints and limitations are most burdensome to patients and their parents? Mitochondrion, 13(1), 15-24, doi:10.1016/j. mito.2012.11.002. Koopman, W. J. H., Willems, P. H. G. M., & Smeitink, J. A. M. (2012). Monogenic mitochondrial disorders. New England Journal of Medicine, 366(12), 1132-1141, doi:10.1056/NEJMra1012478. Law, M., Missiuna, C., Pollock, N., & Stewart, D. (2005). Foundations for occupational therapy practice with children. In J. Case-Smith (Ed.), Occupational Therapy for Children (pp. 53-87). St.Louis, Missouri: Elsevier Mosby. Lindenschot, M., de Groot, I. J., Koene, S., Satink, T., Steultjens, E. M., & Nijhuis-van der Sanden, M. W. (2018). Everyday Activities for Children with Mitochondrial Disorder: A Retrospective Chart Review. Occupational Therapy International. Martens, A. M., Gorter, H., Wassink, R. G., &Rietman, H. (2014). Physical activity of childrenwith amitochondrial disease compared to children who are healthy. Pediatric Physical Therapy, 26(1), 19-26, doi:10.1097/ PEP.0000000000000016. Miles, M. B., Huberman, A. M., & Saldana, J. (2013). Qualitative data analysis: Sage. O’Brien, B. C., Harris, I. B., Beckman, T. J., Reed, D. A., & Cook, D. A. (2014). Standards for reporting qualitative research: a synthesis of recommendations. Academic Medicine, 89(9), 1245-1251. Piaget, J. (1964). Part I: Cognitive development in children: Piaget development and learning. Journal of research in science teaching, 2(3), 176-186. Poulsen, A. A., Rodger, S., & Ziviani, J. M. (2006). Understanding children’s motivation from a self-determination theoretical perspective: Implications for practice. Australian Occupational Therapy Journal, 53(2), 78-86, doi:10.1111/j.1440-1630.2006.00569.x. Powrie, B., Kolehmainen, N., Turpin, M., Ziviani, J., & Copley, J. (2015). The meaning of leisure for children and young people with physical disabilities: a systematic evidence synthesis. Developmental Medicine and Child Neurology, 57(11), 993-1010, doi:10.1111/dmcn.12788. Rahman, J., & Rahman, S. (2018). Mitochondrial medicine in the omics era. The Lancet. Reed, K. L., & Sanderson, S. N. (1999). Concepts of occupational therapy (Vol. Book, Whole): Lippincott Williams & Wilkins. Ryan, R. M., & Deci, E. L. (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American psychologist, 55(1), 68. Shields, N., King, M., Corbett, M., & Imms, C. (2014). Is participation among children with intellectual disabilities in outside school activities similar to their typically developing peers? A systematic review. Developmental Neurorehabilitation, 17(1), 64-71, doi:10.3109/17518423.2013.836256. Stafford, A., Laybourn, A., Hill, M., & Walker, M. (2003). ‘Having a say’: Children and young people talk about consultation. Children & Society, 17(5), 361-373, doi:10.1002/CHI.758. Wilcock, A. A. (2006). An occupational perspective of health (Vol. Book, Whole): Slack Incorporated. Willis, C., Girdler, S., Thompson, M., Rosenberg, M., Reid, S., & Elliott, C. (2017). Elements contributing to meaningful participation for children and youth with disabilities: a scoping review. Disability and Rehabilitation, 39(17), 1771-1784, doi:10.1080/09638288.2016.1207716.

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