CHAPTER 3 66 from the global low functioning profile and the global moderate functioning profile. Work activities were only mentioned by the two children who were old enough to work, as the minimum age for employment in the Netherlands is 15 years. Wants and needs, experience and performance During the interviews and analysis, the three questions on the wants and needs, the experience and the performance were ultimately connected to each other. Therefore, we decided to present the outcomes together. Figure 2 presents the network display that visualises the children’s perspective on activities. There were four themes on want/needs: (1) I want to meet up with others whenever I want to, (2) I want to be able to…, (3) I do not want to… and (4) Dream. As these themes on Figure 1 Occupational performance areas, activity categories and activities of children with a mitochondrial disorder. ! & )+,& & & ! Children with mitochondrial disorder Personal maintenance Leisure Productivity School activities Work activities e.g. working in a restaurant, working in a social workplace with wood processing. Schoolyard Exercise Classes Learning by playing Less frequent activities Passive Active Social e.g. making jokes, phoning, go ing for a drink, meeting/ playing with friends, shopping, going to the disco, playing with siblings, playing hide and seek. e.g. horse riding, quad driving, go-karting, jumping on trampoline, playing on playground, gardening. e.g. cuddling with cats, drawing, watching television, using social media, singing, listening to music, watching movies on tablet, gaming, reading, playing with toys, couch surfing. e.g. bowling, going to a football stadium, going on a holiday, playing in a playlet, going to a theme park, going to a care farm. e.g. gymnastics, table tennis, swim, sherborne. e.g. doing homework, making tests, keeping agenda, packing backpack, training on the workplace. e.g. calculating, reading, counting, writing, learning Dutch language, cooking, learning about culture and society, working with textile. e.g. computering, coloring, drawing, crafting, painting. e.g. playing tag, playing hide and seek, climbing on climbing frame, watching animals. Therapy activities House chores Self-care activities Mobility / Transport activities Sports activities Play / Game / Hobby activities Remaining school related e.g. occupational therapy, physical therapy, speech therapy, ambulatory educational support. e.g. clearing the table, doing the dishes, (helping with) doing the groceries, feeding the cats, vacuuming, folding and ironing laundry. e.g. getting (un)dressed, brushing teeth, going to the toilet, sleeping, taking a shower or bath, combing hair, lacing up shoes, cutting food, drinking, putting on/o coat. e.g. cycling, walking, walking with the walk-cycle, by step, by taxi, by wheelchair, by power wheelchair. e.g. soccer, swim, tennis, fitness.
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