MEANINGFUL ACTIVITIES OF CHILDREN WITH MITOCHONDRIAL DISORDER 63 3 playing, sports and mobility/transport. Coding was independently performed by two researchers (ML & JZ) for the first five interviews, which included the Dutch- German interview (JZ is bilingual). These interviews and codes were discussed between the researchers to reach a consensus. If necessary, codes were added or merged. Subsequently, one researcher (ML) coded the remaining interviews. After the thematic coding process, the codes were ordered into pattern codes by ML, and this action led to a network display of the data (Miles et al. 2013). Finally, the themes and quotations were translated into English by the authors, who are qualified at upper-intermediate and advanced English levels, and the quotations and themes were checked by a translation service. Table 4 The utilised techniques, parental involvement and location for the interviews. Case Interview techniques Parent involvement Location of the interview 1 ‘Standard’ semi-structured questions, use of play and use of a hand-puppet Mother and father present, limited involvement in the conversation At home 2 ‘Standard’ semi-structured questions and use of Talking Mats® picture symbols Mother present and involved in making communication easier At home 3 Closed questions based on information from the mother on which activities the child performed Mother present and involved in interpreting communication (only non-verbal) At home 4 ‘Standard’ semi-structured questions Mother present but not involved At home 5 ‘Standard’ semi-structured questions Mother and father present and involved in facilitating communication At home 6 ‘Standard’ semi-structured questions and use of Talking Mats® picture symbols Mother and father present, limited involvement in the conversation At home 7 Auto-driven photo elicitation and use of Talking Mats® picture symbols Mother and father present and involved in the conversation At the hospital 8 Use of Talking Mats® picture symbols Mother present and involved in the communication At home 9 ‘Standard’ semi-structured questions Parents not present At home Note: interviews for cases 3 and 7 were not analysed further.
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