CHAPTER 2 44 from the low cognitive level with a moderate to normal ambulation profile attended to special education, two children attended to regular education. Two of the children with the global moderate functioning profile attended to special education, while five attended to regular education. Sometimes, small adaptations were made: “She goes to regular education, but when she is too tired she stays at home for the afternoon”. This quote also illustrate that the energy level is used as a deciding factor in performing or avoiding the activity. Notes about energy level as this deciding factor were present in all occupational performance areas. Although the type of education varied from special to regular education, the range of activities did not differ amongst the three profiles. Most children attended classes that included writing, spelling and calculating, as well as physical and/or occupational therapy. Figure 1 Activities, activity categories and occupational performance areas of children with mitochondrial disorder Children with mitochondrial disorder Self-care activities House chores Mobility / transport activities School activities Therapy activities Hobby activities Computing activities Play activities Sports activities For example, getting (un)dressed, cutting food, drinking, brushing teeth, going to the toilet, sleeping in, taking moments of rest, and taking a shower. For example, clearing the table, doing the dishes, (helping with) doing the groceries, mowing the lawn, helping in the garden, and walking the dog. For example, physical therapy, speech therapy, occupational therapy, psychology, online therapy, sports therapy, and wood process therapy. For example, calculating, doing grammar, doing gymnastics, training on the workplace, making notes, writing, tutoring, and doing homework. For example, crafting, reading, puzzling, painting, drawing, drumming, designing clothes, watching football, listening to music, watching movies, having fun with friends, and getting read. For example, calculating on pc, watching movie on pc, working on laptop, playing on the PlayStation, playing games on pc/tablet, and Facebooking. For example, playing with noisy toys, playing with a doll, playing with cars, playing parlor game, playing monopoly, playing in doctors corner, and playing peekaboo. For example, soccer, gymnastics, horse riding, swim, jump on trampoline, ballet, move/dance on music, and judo. For example, by train, by bus, cycling, walk to village, walk home, and walk with the walk-cycle.
RkJQdWJsaXNoZXIy MjY0ODMw