CHAPTER 9 238 Therefore, based on the findings of this thesis and the reflections in the discussion, I can summarize the following main recommendations to make a difference for the children: 1. Recommendations to improve quality of child-centred care i. for practice: • Professionals should incorporate the information of parents and the information of children to get more insight into the child’s perspective; • Professionals wishing to uncover the child’s perspective should gain knowledge of children’s communication levels and should be skilled in verbal & non-verbal communication, the use of AAC, bonding with the child, have a sense for timing and flexibility, should be able to set a collaborative and interested atmosphere, and be able to direct parental influence to supportive actions; • Health care professionals should shift to a family centred participation-focused with a focus on things that matter (values); • Health care professionals should acknowledge the developmental potential of children; ii. for research: • Meaningful activities from the child’s perspective should be the focus of child centred care and research; • Scientific journals and senior researchers should encourage creative and individualized data-collection methods if it contributes to the internal, external or ecological validity of the research; • Home-based care should be made accessible and feasible for all children and their parents. Therefore, future research should focus on the feasibility and effectiveness of home-based interventions for children. Special attention is needed for studying how to lower the burden for parents; • Future research should study if adapting the GAS to a score of 0 for the current situation (as it is neutral), a score of -2 for deterioration and a score of, at least, +5 to the goal enhances acknowledging the developmental potential. 2. Recommendations to facilitate further implementation of and research on the PRPP-System of Task Analysis and Intervention i. for practice: • Occupational therapists should use the guidelines for implementing the PRPP-Assessment when using it with parent-provided videos; • PRPP-certified OTs should receive additional training for assessing people with very limited functional abilities in which the focus of scoring is on behaviour (as opposed to the level of activity);
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