GENERAL INTRODUCTION 21 1 preferred that assessments can be applied in practice and in scientific research. Therefore, there is a need for assessments that are flexible enough to make personalized measurements of heterogenic groups possible, such as for children with mitochondrial disorders, but are standardized and rigour enough to measure effectiveness in practice and research. Assessment to measure occupational performance of children with a mitochondrial disorder Several assessments are available to measure occupational performance, but not all of them are flexible enough to be applied to children with severe or multiple disabilities. In an extensive review of Koene et al.30 several instruments were identified that measure on the activities level of children with a mitochondrial disorder. In this review, only the Paediatric Evaluation of Disabilities Inventory (PEDI)66 was mentioned to be able to give insight in occupational performance. A limitation of this questionnaire is that it is only valid for children until the age of 7.5 years. Research focusing on children with cerebral palsy67, also known for their multiple disabilities, confirms that the PEDI is the best option but its use Figure 2 Depiction of the Person – Environment – OccupationModel of Occupation Performance across the lifespan illustrating hypothetical changes in occupational performance at three different points in time65
RkJQdWJsaXNoZXIy MjY0ODMw