CHAPTER 8 198 The Perceive, Recall, Plan and Perform (PRPP) System of Task Analysis and Intervention21, 22, comprising the PRPP-Assessment and the PRPP-Intervention, shows potential for child-centered care-at-distance. The PRPP-Assessment has been applied to children with multiple disabilities, ranging from children with very limited functional abilities to typically developing children. In recent studies, the PRPP-Assessment has been found to be reliable and valid when using parent- provided videos of children with a mitochondrial disorder performing meaningful activities23. The PRPP-Assessment has been successfully used in pre–post-intervention studies24-31 but its responsiveness in children with multiple disabilities, such as amitochondrial disorder, is yet unknown. The PRPP-Intervention is a task-oriented cognitive strategy approach that simultaneously focuses on task training and strategy training within the context of everyday performance32. The PRPP-Assessment and PRPP-Intervention have not yet been studied in a home-based program. Therefore, the primary aim of the current study is to explore the potential of the PRPP-Assessment to measure change in the meaningful activities of children with a mitochondrial disorder. As this requires change, the PRPP-Intervention will be used in a home-based program, giving input for the secondary aim of this study, which is to describe the feasibility of this intervention. Methods An exploratory longitudinal multiple case series mixed-methods design is used for this study, with a quantitative approach to explore the responsiveness of the PRPP-Assessment and a qualitative approach to explore the feasibility of the PRPP-Intervention in a home-based program. Responsiveness was evaluated, based on the COSMIN principles11, 33, by assessing longitudinal validity and reproducibility and evaluating the interpretability of the change scores. Change was measured using two concurrent validated measurements for the performance of everyday activities – the Canadian Occupational Performance Measure (COPM) and the Goal Attainment Scale (GAS) – and compared with the outcomes on the PRPP-Assessment. Enablement of daily activities was stimulated by a six-week home-based video coaching program with the PRPP-Intervention following a triple-action approach34 (figure 1) in which the parent was coached by an occupational therapist (OT) and, in turn, the parent taught the child new skills in the home environment.
RkJQdWJsaXNoZXIy MjY0ODMw