CHAPTER 7 164 Parent Opinions To take into account parent’s view on the validity of the PRPP-Assessment, parents were asked if they recognized their child in the PRPP-report that was produced following the PRPP-Assessment. The main question to parents was: “Is the PRPP-report consistent with your observations on the everyday functioning of the child, and especially with the focus on the child’s abilities and difficulties?” Answering options were: yes, partially, and no. Parents were asked to elaborate on their answer. Procedure Parents were contacted by the first author. After informed consent, they received a written instruction to videotape everyday activities. This instruction was optimized based on a case-report[18] and action-design-study[19] with parents and OTs. The instruction contained the assignment to videotape at least three meaningful activities of selfcare, play or school activities that are challenging in everyday life. Challenging was explained by mentioning that it required ‘thinking’ of the child. Parents were encouraged to choose a device that would interfere the least with usual performance. They were instructed to film the ‘whole’ activity, from preparing the activity (for instance, gathering the pencils for coloring) to finishing the activity (for instance, clearing up the table after coloring). They were instructed to film the whole body and environment that was relevant for performance. Ethical considerations and privacy legislations were explained and adhered by using a safe, online storage. This system was used to view the videos: parents could only see their own videos, and raters could only see the videos they were assigned to. When videos had been uploaded, parents and the researcher (ML) discussed the criterion, by questioning: “For this specific task, what level of performance or ability would be satisfying or acceptable for you?”, and “In your opinion, what level of performance or ability would be satisfying or acceptable for your child?” Where possible, children themselves were also involved in setting the PRPP-Assessment criterion from their perspective. Parents provided videos of three to seven activities per child, thus 65 activities in total. Within two weeks of videoing their child, the researcher (ML) contacted parents to collect the COPM-data. This data has been collected at the home of the child/parent or (due to regulations around COVID-19) by telephone, video-call or e-mail. All parents of the 13 children assigned a COPM-performance score to the different activities, which resulted in 65 scored activities, exceeding the minimum requirement (n=50) to achieve sufficient power for validity measurement[40]. Due to COVID-19 regulations in combination with communication difficulties of children, it was not feasible to collect data from all children only from four children on 20 scored activities.
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