CHAPTER 6 132 Abstract Aims: Performing the Perceive, Recall, Plan and Perform (PRPP)-Assessment, using video material of everyday life, seems sensible to lower the patient burden, enhance ecological validity, and provide care at a distance. However, receipt of adequate video material is not self-evident and assessing videos can be challenging. Therefore, this study aims to optimize the process of gaining video material and to optimize the PRPP-Assessment based on parent-provided videos. Methods: An action design researchmethod was used, focusing on implementation of the PRPP-Assessment based on parent-provided videos within the care of children with a mitochondrial disorder or similar symptoms. Results: Five cycles were conducted. To receive input, the cycles used videos of nine children performing activities, written feedback, and semi-structured interviews and focus groups comprising parents (n=13), a teacher (n=1), occupational therapists (n=16), and other professionals (n=2) . This led to successful implementation of the PRPP-Assessment. General lessons were learned on 1) instructing parents; 2) handling video material; 3) PRPP-Assessment based on parent-provided videos; and 4) PRPP- Assessment of children (with limited functional abilities). Conclusions: Lessons learned should be implemented in practice and are incorporated into a manual to guide the implementation of video-based observations with PRPP-Assessment in practice.
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