INSIGHT INTO DAILY ACTIVITIES OF CHILD WITH MULTIPLE DISABILITIES 119 5 As well as the written instructions, verbal instructions by means of a telephone call were given on request of the mother. Her questions were very practical. For example, a gardening activity could take about 4 hours. She wanted to know when she had enough footage. It was suggested that she tried to film a whole activity or task that lasted for a maximum of 15 minutes. She was also wondering how Jerome would react when he noticed that she was videotaping him. Therefore, her personal suggestion was to film using a mobile phone because it would be the least conspicuous. The last question addressed the position of the camera: in front of the boy, from the back, zooming in on something, etc. It was suggested that this could differ per activity as it depended on what she wanted to show to us and what was important for the task. As long as the child’s actions were clearly on the videotape, it was fine. Both parents videotaped the activities. Four themes emerged from the interviews with parents and the OT: value of the PRPP-assessment, considerations in choosing activities, challenges of video material and challenges in scoring the PRPP-Assessment. Value of the PRPP-Assessment The OT and the parents expressed that the video material really gave a look at the child in his own environment and that observing the activities in the hospital would not give the same amount of information. In general, the report gave a good overview of the occupational performance of Jerome for the parents. They expressed that it was nice to read the analysis of the occupational performance so clearly. They found the four quadrants recognizable due to the described behavior. The report made them think about how they gave instructions to their son. They did mention that the report would become even more useful when there was a clear conclusion with advice on how to enhance the performance of meaningful activities. Although the OT experienced difficulties in scoring the overall performance, she expressed that she felt that the PRPP-Assessment conducted by parent-provided videos had an added value for her daily practice as it gave a clear insight into the occupational performance of Jerome. The OT stated that if the focus were to be more on limitations in physical functioning, other instruments would be more suitable than the PRPP-Assessment. When there are limitations in cognitive functioning the PRPP-Assessment gives practical information on daily functioning. Considerations in choosing activities The parents reflected that the activities were not only fun for Jerome but were also meaningful for him. The OT mentioned that the three activities gave various insights into the different areas of everyday life. The parents mentioned that gardening was
RkJQdWJsaXNoZXIy MjY0ODMw