40 Chapter 2 In this study we will also outline current availability of validated E-tools. Our aim is to assess compliance to our E-headache diary and evaluate patients’ and caregivers’ satisfaction concerning telemedicine at our headache center. METHODS As part of the Dutch headache treatment guideline for neurologists, a systematic review of the literature was performed in July 2022. The following question was assessed: What is the diagnostic accuracy of using E-diaries compared to a medical consultation in diagnosing migraine in patients?8 The literature search was done on Medline and Embase. Search terms included migraine, diary and intermethod comparison or sensitivity and specificity. The exact search terms can be found in Supplementary File 1. To be eligible for inclusion in this review, studies had to meet three criteria: (1) full text in English, (2) enrollment of ≥20 patients, and (3) address the following PICO: P: Patients suspected of migraine; I: Use of (validated) E-headache diaries; C: Usual care/ no use of E-diaries; R: Medical consultation/ multidisciplinary consultation; O: Sensitivity, specificity, positive predictive value (PPV), negative predictive value (NPV) on diagnosing migraine. The Medical Ethics committee of the Leiden University Medical Center (LUMC) judged this study as not being associated with ethical concerns. Therefore, participants did not have to provide additional informed consent. We collected data from two sources: (1) patients diagnosed with migraine who received care at the Leiden Headache Center and were aged 18 years or older, and (2) healthcare providers who treated headache patients at the Leiden Headache Center during the period from April 2022 to March 2023.4 There were no other inclusion criteria. Patients had to use the E-headache diary imbedded in the Patient Journey App for a follow-up period of at least 2 weeks, after which they were invited to fill out a questionnaire on satisfactory with the E-diary and video consultations.1, 9 Patients could be using this E-diary for research or healthcare purposes or a combination of both. As part of their care for patients with headaches, healthcare providers utilized the E-diary and video consultation and were subsequently invited to complete a satisfaction questionnaire. All data were analyzed in a fully anonymized setting. E-questionnaires and E-diary data Patients were followed prospectively between 06 April 2022 and 12 March 2023 with the previously validated E-questionnaires (screening questionnaire and additional more detailed migraine questionnaire) and the E-headache diary during ≥2 weeks
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