24 Chapter 1 Box 1.4. Study samples PRE-SCOPE project part 1| Chapter 2 The sample of the first part of the PRE-SCOPE project, as presented in Chapter 2, consisted of 12 preventive care physicians who worked at well-baby clinics spread across the 12 different regions of the Netherlands (one per province). Most participants (all but one) were woman. A broad scope of work experienced was covered, with work experience varying between 0.5-30 years (M=9.04). Qualitative analyses based on Grounded Theory led to the conceptualization of themes and relevant categories regarding barriers and improvement strategies. PRE-SCOPE project part 2| Chapter 3 The second part of the PRE-SCOPE project, as presented in Chapter 3, holds a mixed-method study where the total sample can be divided into two sub-samples. First, an online survey was completed by 45 parents (39 mothers and 6 fathers) recruited via partners from the Autisme Jonge Kind expertise network. All participants reported in name of both parents, with information about one father missing in total (N=89). Participants reported on their experiences with the early identification process and diagnostic assessment trajectory of in total 45 children. Most of these children was male (82%). All children were diagnosed with ASD, with 11.1% of the children having a comorbid disorder. Second, an additional focus group was held, consisting of 10 parents (nine mothers, one father). Their age varied between 37 and 52 years old (M=43.5). Parents participating in the focus group reported on 12 children: 10 boys and 2 girls. Most parents shared their experiences with one child diagnosed with ASD. Two parents shared experiences with two children, one of which concerned twins. Children received an ASD diagnosis between the ages of three and six years. SCOPE project | Chapter 6 The sample of the SCOPE projected consisted in total of 54 children, divided between two groups. One group called the experimental group, received the BEAR intervention (N=40) whereas the other group, the control group (N=14) received care as usual (CAU). Our sample consisted of infants and toddlers (aged 12-30 months) who were referred to our study by preventive care professionals working at well-baby clinics based on clinical concerns and a positive screen on the CoSoS questionnaire (≥3). Participants were divided into one of the two groups (BEAR or CAU) based on cluster randomization. Assessments were performed at three time points (baseline, endpoint and 6-month follow-up) using the Joint Engagement Rating Inventory (JERI) and Brief Observation of Social Communication Change (BOSCC) as primary outcome measures, both rated on the same parent-child interaction videos. Secondary outcome measures include ADOS-2, global levels of adaptive functioning (Vineland Screener), parental skills (video-observations) and parental well-being (OBVL, WEMWBS).
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