Thesis

106 Chapter 5 the child to any change in the parent-child interaction and the child’s social-communicative behavior. Furthermore, in addition to the JERI and BOSCC(parent) we will observe the child’s behavior in the ADOS procedure and a separate BOSCC(clinician) procedure. Here, the child is interacting with a professional examiner who has not been part of the intervention. The analysis of the ADOS and BOSCC(clinician) data is an important back-up to the analysis of the JERI and BOSCC(parent) data by creating the possibility to compare the child’s behavior while interacting with the parent and with another adult. Furthermore, for our experimental group, there might be bias at our T1 and T2 video measurements, due to the interventionist being the assessor of the JERI and BOSCC. Since data are coded by skilled observers who are not part of the intervention and are unaware of treatment allocation, we hope to minimize this possible bias. This will further be discussed within our finalized paper reporting results of the SCOPE study. So far, several studies examined the importance and effectiveness of early identification and early intervention programs in high-risk groups. However, still several barriers exist as why very young children at high likelihood of ASD receive adequate care later then preferred. The ongoing SCOPE study in which the BEAR intervention plays a pivotal role can help to overcome these barriers. It is specifically designed as an non-stigmatizing answer to difficulties in those children that are at risk at being identified too late due to a less specific phenotype. Also, when difficulties in parent-professional conversations exist regarding developmental concerns, BEAR might be a solution in offering adequate early care. List of abbreviations ADOS-2: Autism Diagnostic Observation Schedule; AE: Adverse Event; ASD: Autism spectrum disorder; Bayley-III Bayley Scales of Infant and Toddler Development; BEAR: Blended E-health for children at eArly Risk); BESTE: the Rating Scale Satisfaction and Effect questionnaire; BITSEA Brief Infant-Toddler Social & Emotional Assessment-Revised; BOSCC: Brief Observation of Social Communication Change; CoSoS: Communication and Social development Signals; JERI: Joint Engagement Rating Inventory; N-CDI: Dutch version of the MacArthur Communicative Development Inventory; PSQ:Parenting Stress Questionnaire (PSQ, in Dutch Opvoedingsbelastingsvragenlijst); RCT: randomized controlled trial; SCOPE: Social COmmunication Program supported by E-health; SOV: Dutch version of the Autism Quotient; Vineland Screener: adapted version of the Vineland Adaptive Behaviour Scales; WEMWBS: Warwick-Edinburgh Mental Well-being Scale;, Tic-P Trimbos and iMTA questionnaire on Costs associated with Psychiatric illness.

RkJQdWJsaXNoZXIy MjY0ODMw